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	<title>Approach to Autism, The Top Resource for Autism and Asperger&#039;s Syndrome.</title>
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		<title>Autism and Online Learning</title>
		<link>http://approachtoautism.com/2013/05/13/1821/</link>
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		<pubDate>Mon, 13 May 2013 13:26:07 +0000</pubDate>
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				<category><![CDATA[Articles of Interest]]></category>
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		<description><![CDATA[Interesting posts brought to our attention from Shaina Watson. Education Database Online Blog Autism and Online Learning: A Guide for Teachers Posted on April 05, 2013 Today, one in every 88 American children is on the autism spectrum. Autism affects more than 2 million people in the U.S. and tens of millions worldwide. But it hasn&#8217;t always been [...]]]></description>
			<content:encoded><![CDATA[<h4>Interesting posts brought to our attention from Shaina Watson.</h4>
<h2>Education Database Online Blog</h2>
<h4><a href="http://www.onlineeducation.net/2013/04/05/autism-and-online-learning-a-guide-for-teachers">Autism and Online Learning: A Guide for Teachers</a></h4>
<div>Posted on April 05, 2013</div>
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<p>Today, <a href="http://www.autismspeaks.org/what-autism/facts-about-autism">one in every 88 American children</a> is on the autism spectrum. Autism affects more than 2 million people in the U.S. and tens of millions worldwide. But it hasn&#8217;t always been this way. Statistics show a tenfold increase in autism in the past 40 years, and prevalence rates are increasing 10%-17% each year.</p>
<p>With autism on the rise, <a href="http://www.washingtonpost.com/wp-dyn/content/article/2009/12/02/AR2009120202884.html?sid=ST2009120204840">many schools struggle to meet the needs of autistic students</a>. Often, autistic adults do not<a href="http://www.edutopia.org/post-secondary-outcomes-students-with-autism-dana-reinecke">take the next step</a> to go on to college or meaningful employment, even though they may be incredibly gifted. Letting students fall behind should not be an option.</p>
<p>If traditional classrooms struggle to effectively educate autistic students, what can online education offer autistic learners? Tech tools and virtual learning environments present an opportunity to better serve autistic students with flexibility and resources that are well suited to guide them in learning. The more educators learn about working with autistic students, the better equipped teachers and students will be for success.</p>
<h3>The Needs of Autistic Students</h3>
<p><a href="http://www.flickr.com/photos/shward/1348089062/"><img src="http://www.onlineeducation.net/images/infographics/large/xautisticstudents1.jpg.pagespeed.ic.8cIChXucvO.jpg" alt="" width="675" height="303" /></a></p>
<p>Autism represents a broad spectrum of students, from high-functioning individuals to those with significant disability. &#8220;You&#8217;ve got some kids who are brilliant in one area and can&#8217;t work at all in another area. There&#8217;s really a range,&#8221; explains autism consultant <a href="http://www.lisajorudy.com/">Lisa Jo Rudy</a>. Each autistic individual is unique with their own set of needs, making it difficult for some educational programs to reach every student. But there are common characteristics that online educators should be aware of and work with, including anxiety and difficulties with attention, communication, and social interaction, as well as a need for multiple learning styles.</p>
<p>Strong feelings of anxiety are common among those with autism or Asperger syndrome. <a href="http://researchautism.net/autism_issues_challenges_problems.ikml?print&amp;ra=23&amp;infolevel=4">Researchers</a> have found that more than 80% of children with autism have at least one anxiety disorder, and many young adults with Asperger syndrome feel intense anxiety, some to a point that requires treatment. Bullying, being put on the spot, time limits, and win-lose situations can be a source of anxiety for autistic students.</p>
<p>Communication abilities will vary among individual students, but all people with autism experience language and communication difficulties of some kind. <a href="http://www.bced.gov.bc.ca/specialed/docs/autism.pdf"><em>Teaching Students With Autism: A Resource Guide for Schools</em></a> identifies common language difficulties among autistic students, including a lack of eye contact, unusual gestures, a lack of expressive language skills, and a difficulty in changing topics.</p>
<p>Social interaction for autistic students can be a challenge, which makes it difficult for these individuals to participate in class discussions. <em>Teaching Students With Autism</em> explains that people with autism have difficulty reading body language and may not pick up on important social cues. They also typically have trouble understanding the perspectives of others.</p>
<p>Attention difficulties are also <a href="http://www.bced.gov.bc.ca/specialed/docs/autism.pdf">common among autistic students</a>. They may find it difficult to give their attention to important concepts, instead focusing on insignificant details. A short attention span, and difficulty shifting attention from one stimulus to the next is also common.</p>
<p>Autistic students often need to be presented with a variety of learning styles. Stephen Edelson of the <a href="http://www.autism.com/index.php/understanding_learning">Autism Research Institute</a> explains, &#8220;It appears that autistic individuals are more likely to rely on only one style of learning.&#8221; That means autism educators will need to offer multiple learning styles — visual, auditory, and hands-on — to discover the method that works best for each student.</p>
<h3>Success for Autistic Students Online</h3>
<p><a href="http://www.flickr.com/photos/williambrawley/4348198150/"><img src="http://www.onlineeducation.net/images/infographics/large/xautisticstudents2.jpg.pagespeed.ic.CMAhIELqli.jpg" alt="" width="675" height="303" /></a></p>
<p>The benefits of online education can be life-changing for autistic students. One 17-year-old with autism, Daniel, <a href="http://www.nytimes.com/2013/01/27/opinion/sunday/friedman-revolution-hits-the-universities.html">found success participating in massive open online courses (MOOCs) with Coursera</a>. Daniel took a modern poetry class from Penn, thriving in the exclusively online format. He and his parents discovered that the online learning system worked well with his social skills and attention deficit, and the rigorous academic curriculum required him to stay on task. Says Daniel, &#8220;I can&#8217;t yet sit still in a classroom, so [Coursera's online offering] was my first real course ever. During the course, I had to keep pace with the class, which is unheard of in special ed. Now I know I can benefit from having to work hard and enjoy being in sync with the world.&#8221;</p>
<p>College student <a href="http://gettingsmart.com/cms/blog/2012/07/autistic-student-feels-reinspired-online-learning/">Ryan Fox</a> has experienced similar success in online learning. For Fox, high school was distracting and stressful. He had trouble keeping up with teachers and had to start his school day all over again when he got home, relearning all of the information he didn&#8217;t understand or hear the first time around. But when Fox was introduced to an online learning environment, it made him feel &#8220;very organized, calm, and safe.&#8221; With online learning, he was able to find order and correctness, and knew what to expect, with no surprises and limited changes.</p>
<p>Where Fox struggled in traditional school, he thrives online. He&#8217;s able to get his schoolwork done quickly and needs almost no accommodations. Says Fox, &#8220;When I was really little, I was curious and loved to learn, but then for a while I got so frustrated I forgot what that was like. I think any student who has certain needs and wants to rediscover his or her love of learning should try online learning. I really believe that in the future everyone will learn this way! We will all be able to learn from the very smartest people on Earth, and we will do it at our own pace every day. Our abilities will matter more than our disabilities.&#8221;</p>
<p>&nbsp;</p>
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		<title>How autism is different in girls vs. boys</title>
		<link>http://approachtoautism.com/2013/05/08/how-autism-is-different-in-girls-vs-boys/</link>
		<comments>http://approachtoautism.com/2013/05/08/how-autism-is-different-in-girls-vs-boys/#comments</comments>
		<pubDate>Wed, 08 May 2013 15:09:09 +0000</pubDate>
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		<description><![CDATA[Published May 08, 2013 The Wall Street Journal &#160; Why do boys get diagnosed with autism four times as often as girls? New research, including some of the latest data from the International Society for Autism Research annual conference last week, addresses this question, one of the biggest mysteries in this field. A growing consensus [...]]]></description>
			<content:encoded><![CDATA[<h1 id="article-title"><span style="font-size: 13px; font-weight: normal; line-height: 19px;">Published May 08, 2013</span></h1>
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<p>The Wall Street Journal</p>
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<p>Why do boys get diagnosed with autism four times as often as girls?</p>
<p>New research, including some of the latest data from the International Society for Autism Research annual conference last week, addresses this question, one of the biggest mysteries in this field.</p>
<p>A growing consensus is arguing that sex differences exist in genetic susceptibility, brain development and social learning in autism—and they are meaningful to our understanding of the disorder and how it will be treated.</p>
<p>Yale University researchers presented results showing that being female appears to provide genetic protection against autism. Meanwhile, scientists at Emory University showed in preliminary work that boys and girls with autism learn social information differently, which leads to divergent success in interactions with other people.The new data, together with previously published studies, suggest that sex should be taken into account in diagnosing and in creating individualized treatment plans, according to experts.</p>
<p>Autism, a developmental disorder characterized by deficits in social skills and repetitive behaviors, affects more than 1 percent of the population. It has long been known to be diagnosed more often in boys.</p>
<p>Yet girls often appear to have more severe autism. The ratio, about four boys to every one girl overall, becomes even more lopsided when intelligence is taken into account. At higher intelligence levels, boys with autism often outnumber girls eight or 10 to one, say researchers.</p>
<p>Why this ratio exists and how much it is skewed by misdiagnosis or under-diagnosis in girls isn&#8217;t clear. More and more, however, scientists think the sex distribution is meaningful.</p>
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<p>Read more: <a href="http://www.foxnews.com/health/2013/05/08/how-autism-is-different-in-girls-vs-boys/#ixzz2SiKatRyC">http://www.foxnews.com/health/2013/05/08/how-autism-is-different-in-girls-vs-boys/#ixzz2SiKatRyC</a></p>
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		<title>Parents Herald Rise in Apps</title>
		<link>http://approachtoautism.com/2012/02/11/parents-herald-rise-in-apps/</link>
		<comments>http://approachtoautism.com/2012/02/11/parents-herald-rise-in-apps/#comments</comments>
		<pubDate>Sat, 11 Feb 2012 13:16:04 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Articles of Interest]]></category>
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		<description><![CDATA[Parents Herald Rise in Apps to Help Treat Autism but Proof of Therapeutic Benefits Is Lacking By Kerry Davis, IDG News Feb 10, 2012 3:30 pm With one honk, the course of Shannon Des Roches Rosa&#8217;s day abruptly changed. &#8220;It&#8217;s my son,&#8221; Rosa announced, as she quickly removed the microphone pinned to her shirt. &#8220;I&#8217;ve gotta run,&#8221; [...]]]></description>
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<h1>Parents Herald Rise in Apps to Help Treat Autism but Proof of Therapeutic Benefits Is Lacking</h1>
<p>By <a href="http://www.pcworld.com/author/Kerry-Davis">Kerry Davis</a>, <a href="http://www.idgnews.net/" target="_blank">IDG News</a> Feb 10, 2012 3:30 pm</p>
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<p>With one honk, the course of Shannon Des Roches Rosa&#8217;s day abruptly changed.</p>
<p>&#8220;It&#8217;s my son,&#8221; Rosa announced, as she quickly removed the microphone pinned to her shirt. &#8220;I&#8217;ve gotta run,&#8221; she said, as she hurried out the door of her sprawling home in Redwood City, California. Her 11-year-old son, Leo, just home from school, must be met at the bus at the top of the driveway before coming indoors.</p>
<p>Once inside, Rosa immediately showed him the schedule of activities. First up: Bathroom, hand-washing, then a snack.</p>
<p>(Watch a video of Leo at home, <a href="http://www.youtube.com/watch?v=IpluHBdRJ7k&amp;feature=channel_video_title" target="_blank">here</a>)</p>
<p>Working with an easy-to-understand schedule that usually includes picture icons is key for a smooth day for Leo and many autistic children. Experts say autistic children respond best to things they can see. Too often, things they hear or feel are off-putting and stimulate their senses in ways that can cause pain or irritation.</p>
<p>&#8220;Auditorily they have a difficult time processing something, it&#8217;s sort of like someone speaking a different language to you,&#8221; said Jennifer Sullivan, the executive director of the Morgan Autism Center, which is Leo&#8217;s school. &#8220;So from the very beginning we would draw pictures of &#8216;this is what you&#8217;re schedule would look like for the day.&#8217;&#8221;</p>
<p>But after his snack, Leo&#8217;s free time usually involves the family iPad. Rosa believes his instinctive draw toward visual learning is letting the iPad reach her son in ways no other therapy had done before. The iPad, she said, has changed Leo for the better, making him more independent. And she&#8217;s quick to point out that he&#8217;s still an 11-year-old boy who deserves to play sometimes, which he also does on the family&#8217;s iPad.</p>
<p>The U.S.-based organization Autism Speaks estimates there are hundreds of apps built for use on iOS devices, specifically for autism. A search of the Apple iTunes store brought more than 580 autism-related apps, while an Android Market search for autism apps yielded about 250 results.</p>
<p>&#8220;The more we dig, the bigger the rabbit hole is and we&#8217;re starting to think tech is a really big key for how we can develop therapies quickly,&#8221; said Marc Sirkin, vice president of social marketing and online fundraising for Autism Speaks.</p>
<p>However, the organization is cautious about the iPad&#8217;s popularity. Its quick ascent means no one has actually studied which apps are of therapeutic benefit. Sure, Sirkin said, parents may hear anecdotal stories of apps completely changing a child&#8217;s life, but there is no measurable proof yet that the apps really work.</p>
<p>&#8220;The challenge with iOS apps is a lot are developed by well-meaning parents but under no guidance with autism experts,&#8221; Sirkin said. &#8220;For us, it brings in questions as an evidenced-based organization and we&#8217;re starting to ask: Does any of this actually make any difference &#8230; the danger is that the iPad becomes a really expensive toy.&#8221;</p>
<p>But some parents are OK without the proof just yet. Eric Tanner, the father of an 8-year-old with autism, said what the iPad really offers is accessibility and hope that a better life is possible for his child.</p>
<p>&#8220;The reality is for people like us, it&#8217;s a huge amount of hope,&#8221; Tanner said.Tanner said the previous machine available for his daughter Sophia cost a couple thousand dollars and was programmable with only 20 keys to ask for specific things, like helping Sophia to say if she was hungry or thirsty. But it couldn&#8217;t help her express emotions. Just a year later, Sophia&#8217;s iPad is loaded up with a nearly $500 app built to help autistic children expand their vocabularies.</p>
<p>&#8220;It&#8217;s a huge learning tool, it&#8217;s massive,&#8221; Tanner said. &#8220;It&#8217;s really been one of the biggest things in her life so far.&#8221;</p>
<p>Still, the iPad remains just one many tools to help Sophia, who has a full weekly schedule complete with equine therapy, floor therapy, speech and occupational therapy, to name a few.</p>
<p>Some app builders are coming to the process by seeing a need, themselves. Karen Head is a speech therapist from Boston. She and two colleagues often talked about writing a book to help their patients, but it wasn&#8217;t until they hit on the idea of building an app that they started their business. Now, All4myChild&#8217;s packaged app called &#8220;Social Adventures&#8221; has 44 activity descriptions, nine visual cartoons that are mostly focused on social interaction skills, and a new game coming out as a separate app on Monday.</p>
<p>&#8220;We wanted to have a platform we could continue to add to, so families and kids could grow with the app and we could make changes&#8221; Head said, pointing out that anyone able to invest about $10,000 can have an app ready for the marketplace within six months.</p>
<p>Which is exactly why Autism Speaks warns parents about finding salvation in apps.</p>
<p>And in some ways, Head agrees there is reason to be cautious.</p>
<p>&#8220;The dark side of all the bells and whistles is that in some cases it&#8217;s too much, and kids get overly focused on things that jingle and jangle,&#8221; Head said. &#8220;As a therapist, we want them to listen to us.&#8221;</p>
<p>Sullivan seconds that idea, saying that even Leo, in particular, can get drawn to the patterns in an app rather than actually learning the content it is trying to provide.</p>
<p>&#8220;It&#8217;s a little bit tricky because it&#8217;s such a compelling medium for kids with autism, they want to do it intensely,&#8221; Sullivan said.</p>
<p>Autism Speaks is excited about two different areas of research that could use gaming consoles to teach autistic individuals how to interact in social situations and learn how to read facial features better.</p>
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<h1>but Proof of Therapeutic Benefits Is Lacking</h1>
<p>By <a href="http://www.pcworld.com/author/Kerry-Davis">Kerry Davis</a>, <a href="http://www.idgnews.net/" target="_blank">IDG News</a> Feb 10, 2012 3:30 pm</p>
</div>
<div id="articleText">
<div>
<p>With one honk, the course of Shannon Des Roches Rosa&#8217;s day abruptly changed.</p>
<p>&#8220;It&#8217;s my son,&#8221; Rosa announced, as she quickly removed the microphone pinned to her shirt. &#8220;I&#8217;ve gotta run,&#8221; she said, as she hurried out the door of her sprawling home in Redwood City, California. Her 11-year-old son, Leo, just home from school, must be met at the bus at the top of the driveway before coming indoors.</p>
<p>Once inside, Rosa immediately showed him the schedule of activities. First up: Bathroom, hand-washing, then a snack.</p>
<p>(Watch a video of Leo at home, <a href="http://www.youtube.com/watch?v=IpluHBdRJ7k&amp;feature=channel_video_title" target="_blank">here</a>)</p>
<p>Working with an easy-to-understand schedule that usually includes picture icons is key for a smooth day for Leo and many autistic children. Experts say autistic children respond best to things they can see. Too often, things they hear or feel are off-putting and stimulate their senses in ways that can cause pain or irritation.</p>
<p>&#8220;Auditorily they have a difficult time processing something, it&#8217;s sort of like someone speaking a different language to you,&#8221; said Jennifer Sullivan, the executive director of the Morgan Autism Center, which is Leo&#8217;s school. &#8220;So from the very beginning we would draw pictures of &#8216;this is what you&#8217;re schedule would look like for the day.&#8217;&#8221;</p>
<p>But after his snack, Leo&#8217;s free time usually involves the family iPad. Rosa believes his instinctive draw toward visual learning is letting the iPad reach her son in ways no other therapy had done before. The iPad, she said, has changed Leo for the better, making him more independent. And she&#8217;s quick to point out that he&#8217;s still an 11-year-old boy who deserves to play sometimes, which he also does on the family&#8217;s iPad.</p>
<p>The U.S.-based organization Autism Speaks estimates there are hundreds of apps built for use on iOS devices, specifically for autism. A search of the Apple iTunes store brought more than 580 autism-related apps, while an Android Market search for autism apps yielded about 250 results.</p>
<p>&#8220;The more we dig, the bigger the rabbit hole is and we&#8217;re starting to think tech is a really big key for how we can develop therapies quickly,&#8221; said Marc Sirkin, vice president of social marketing and online fundraising for Autism Speaks.</p>
<p>However, the organization is cautious about the iPad&#8217;s popularity. Its quick ascent means no one has actually studied which apps are of therapeutic benefit. Sure, Sirkin said, parents may hear anecdotal stories of apps completely changing a child&#8217;s life, but there is no measurable proof yet that the apps really work.</p>
<p>&#8220;The challenge with iOS apps is a lot are developed by well-meaning parents but under no guidance with autism experts,&#8221; Sirkin said. &#8220;For us, it brings in questions as an evidenced-based organization and we&#8217;re starting to ask: Does any of this actually make any difference &#8230; the danger is that the iPad becomes a really expensive toy.&#8221;</p>
<p>But some parents are OK without the proof just yet. Eric Tanner, the father of an 8-year-old with autism, said what the iPad really offers is accessibility and hope that a better life is possible for his child.</p>
<p>&#8220;The reality is for people like us, it&#8217;s a huge amount of hope,&#8221; Tanner said.Tanner said the previous machine available for his daughter Sophia cost a couple thousand dollars and was programmable with only 20 keys to ask for specific things, like helping Sophia to say if she was hungry or thirsty. But it couldn&#8217;t help her express emotions. Just a year later, Sophia&#8217;s iPad is loaded up with a nearly $500 app built to help autistic children expand their vocabularies.</p>
<p>&#8220;It&#8217;s a huge learning tool, it&#8217;s massive,&#8221; Tanner said. &#8220;It&#8217;s really been one of the biggest things in her life so far.&#8221;</p>
<p>Still, the iPad remains just one many tools to help Sophia, who has a full weekly schedule complete with equine therapy, floor therapy, speech and occupational therapy, to name a few.</p>
<p>Some app builders are coming to the process by seeing a need, themselves. Karen Head is a speech therapist from Boston. She and two colleagues often talked about writing a book to help their patients, but it wasn&#8217;t until they hit on the idea of building an app that they started their business. Now, All4myChild&#8217;s packaged app called &#8220;Social Adventures&#8221; has 44 activity descriptions, nine visual cartoons that are mostly focused on social interaction skills, and a new game coming out as a separate app on Monday.</p>
<p>&#8220;We wanted to have a platform we could continue to add to, so families and kids could grow with the app and we could make changes&#8221; Head said, pointing out that anyone able to invest about $10,000 can have an app ready for the marketplace within six months.</p>
<p>Which is exactly why Autism Speaks warns parents about finding salvation in apps.</p>
<p>And in some ways, Head agrees there is reason to be cautious.</p>
<p>&#8220;The dark side of all the bells and whistles is that in some cases it&#8217;s too much, and kids get overly focused on things that jingle and jangle,&#8221; Head said. &#8220;As a therapist, we want them to listen to us.&#8221;</p>
<p>Sullivan seconds that idea, saying that even Leo, in particular, can get drawn to the patterns in an app rather than actually learning the content it is trying to provide.</p>
<p>&#8220;It&#8217;s a little bit tricky because it&#8217;s such a compelling medium for kids with autism, they want to do it intensely,&#8221; Sullivan said.</p>
<p>Autism Speaks is excited about two different areas of research that could use gaming consoles to teach autistic individuals how to interact in social situations and learn how to read facial features better.</p>
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<p>&nbsp;</p>
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		<title>Brain Activity May Help Predict Autism</title>
		<link>http://approachtoautism.com/2012/01/31/brain-activity-may-help-predict-autism/</link>
		<comments>http://approachtoautism.com/2012/01/31/brain-activity-may-help-predict-autism/#comments</comments>
		<pubDate>Tue, 31 Jan 2012 01:06:34 +0000</pubDate>
		<dc:creator>admin</dc:creator>
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		<category><![CDATA[Autism Spectrum]]></category>

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		<description><![CDATA[Before Age 1: Study Differences in responses to eye contact detected in brains of at-risk infants as early as 6 months January 26, 2012 &#160; THURSDAY, Jan. 26 (HealthDay News) &#8212; Infants younger than a year old who are at risk of developing autism may already have telltale brain responses when another person looks at [...]]]></description>
			<content:encoded><![CDATA[<h1>Before Age 1: Study</h1>
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<h2>Differences in responses to eye contact detected in brains of at-risk infants as early as 6 months</h2>
<p>January 26, 2012</p>
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<p>THURSDAY, Jan. 26 (HealthDay News) &#8212; Infants younger than a year old who are at risk of developing autism may already have telltale brain responses when another person looks at or away from them, the results of a new study indicate.</p>
<p><a id="read_more"></a>The researchers say that the findings suggest that assessing brain responses in infants as young as 6 months may one day help predict whether they&#8217;ll develop autism at a later age. Currently, firm diagnoses of autism are made only after a child is 2 years old, according to the study in the Jan. 26 online edition of <em>Current Biology</em>.</p>
<p>&#8220;Our findings demonstrate for the first time that direct measures of brain functioning during the first year of life associate with a later diagnosis of autism &#8212; well before the emergence of behavioral symptoms,&#8221; study author Mark Johnson of Birkbeck College, University of London, said in a journal news release.</p>
<p>The study included infants aged 6 to 10 months who had an increased risk of developing autism because they had an older brother or sister with the disorder. The researchers monitored the infants&#8217; brain activity while they viewed faces that switched between looking at them and looking away from them.</p>
<p>Previous research has shown that characteristic patterns of brain activity occur in a normal response to eye contact with other people, a response that&#8217;s crucial for face-to-face social interaction. Older children with autism have unusual patterns of eye contact and of brain responses to social interactions that involve eye contact.</p>
<p>This study found that the brains of the infants at risk of developing autism already process social information in a different way than typically developing children.</p>
<p>&#8220;At this age, no behavioral markers of autism are yet evident, and so measurements of brain function may be a more sensitive indicator of risk,&#8221; Johnson said.</p>
<p>However, the researchers noted that not all the babies who showed these differences in brain function were later diagnosed with autism, and vice versa. Brain-function measuring would need to be further adjusted and used alongside other methods to serve as an accurate predictor of autism in a clinical setting, the researchers said.</p>
<p><strong>More information</strong></p>
<p>The U.S. National Institute of Neurological Disorders and Stroke has more about <a href="http://www.ninds.nih.gov/disorders/autism/detail_autism.htm">autism</a>.</p>
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		<title>Autism advice: When saying nothing is better than saying anything at all</title>
		<link>http://approachtoautism.com/2012/01/02/autism-advice-when-saying-nothing-is-better-than-saying-anything-at-all/</link>
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		<pubDate>Mon, 02 Jan 2012 14:26:16 +0000</pubDate>
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		<description><![CDATA[Published: Jan. 1, 2012 Updated: 11:10 p.m. Text:  Next Article » Autism advice: When saying nothing is better than saying anything at all By JO ASHLINE Columnist: This Modified Life / Just Ask Jo FOR THE REGISTER ashline02@sbcglobal.net It begins the minute you announce you’re going to have a baby; well-meaning friends and family bombard [...]]]></description>
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<div>Published: Jan. 1, 2012 Updated: 11:10 p.m.</div>
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<h1>Autism advice: When saying nothing is better than saying anything at all</h1>
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<p>By JO ASHLINE<br />
Columnist: This Modified Life / Just Ask Jo<br />
FOR THE REGISTER</p>
<div><a href="mailto:ashline02@sbcglobal.net">ashline02@sbcglobal.net</a></div>
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<p>It begins the minute you announce you’re going to have a baby; well-meaning friends and family bombard you with advice, claiming to have the best to offer in everything from heartburn cures to breastfeeding techniques. Your mother-in-law insists you don’t lift anything heavier than 6 ounces and your sister, who’s had three natural births in the last three years rallies against the evils of the epidural. It’s a free-for-all at your expense and even though you don’t technically have morning sickness, you find yourself pretty nauseous anytime someone opens their mouth to bestow yet another tidbit of</p>
<p>Of course, what you don’t realize then is that this was just the beginning, because once the baby arrives, the advice multiplies and you can barely approach your child without someone getting in the way to tell you how to do it “better.”</p>
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<p><a title="This Modified Life" href="http://www.ocregister.com/common/archives/?catID=22086"><strong>This Modified Life</strong></a> is a column by <a title="Jo Ashline" href="http://joashline.com/"><strong>Jo Ashline</strong></a> for and about the families in Orange County living with special needs. Jo is a freelance writer and married mother of two. If you have a question for Jo or a suggestion for a topic, email her at<a href="mailto:ashline02@sbcglobal.net">ashline02@sbcglobal.net</a>.</p>
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<p>For the most part, parents are able to if not embrace this constant barrage of opinions and suggestions, at least accept it as a part of the parenting journey. While there’s no doubt that unsolicited advice about how to raise your child is nothing short of annoying, it’s also inevitable that folks tend to stick their noses where they don’t belong where children are concerned.</p>
<p>But what happens when the child in question has autism and the person giving their opinions or advice has zero experience dealing with the unpredictable and often frightening nature of raising such a child? Does the playing field change? Is the advice less tolerable, the comments seemingly crueler, the lack of perspective so blaring it leaves you feeling sick to your stomach with resentment and loneliness?</p>
<p>You betcha.</p>
<p>Even those who fiercely loved my son made major mistakes when he was first diagnosed with severe autism and epilepsy. I heard everything from “He’ll grow out of it,” to “It’s not so bad,” to “Have you tried speaking slower to him?” Strangers, in their natural state of curiosity, would ask me what I ate during my pregnancy, whether I had exposed my unborn baby to unnecessary stress and anxiety, and publicly pondered whether I had been healthy enough to have a baby in the first place. It was an emotionally vulnerable time for me as a mother, and the constant interference from others was only adding to the chaos that was already brewing in my heart and mind.</p>
<p>As of November 2011, the <a href="http://www.cdc.gov/ncbddd/autism/index.html">Centers for Disease Control maintains that approximately 1 in 110 children are diagnosed with an Autism Spectrum Disorder</a>, so I know I’m not the only one who has faced ignorant and uneducated commentary aimed at my child and my parenting skills.</p>
<p>Sometimes, the awful advice and opinions come from family and friends.</p>
<p>Sylvia Imai-Sumida, whose son has autism, recalls being told, “You don&#8217;t discipline him enough.” Carissa Evel was given the sage advice to spank her special needs daughter to keep her in line. Shannon J. Wasserman says she’s heard it all: “You&#8217;re looking for a label to make an excuse,” ”You&#8217;re neurotic, “Nothing is wrong since he looks good,” and “Your second cousin didn&#8217;t talk until she was 6.” Gabriella True was asked, “‎Why do you bother with all the therapy when your son is just retarded and will never get better?&#8221; by a so-called friend. (Needless to say, she ended that relationship.)</p>
<p>Sometimes the advice and opinions come from professionals; professionals parents trust to do right by their child.</p>
<p>“I told the pediatrician that my son could recite Harry Potter and the Prisoner of Azkaban word for word but at 4 years old he couldn&#8217;t have a conversation with me. The doctor said, &#8216;You don&#8217;t need to see the neurologist, he&#8217;s fine,&#8217;&#8221; says Simran Mangat-Garcia.</p>
<p>Moni Stars, who has two boys on the spectrum, was all but ridiculed by her childrens&#8217; first doctor, who told her she was confusing her boys by speaking two languages in the home. He told her to stick to English and wait six more months before pursuing a diagnosis &#8211; precious time in the world of early intervention and potential for progress. “You worry too much,&#8221; he said, and Stars has since switched doctors and received the proper diagnoses and services for her sons.</p>
<p>It’s a perfect storm of determined parents guided by their intuition and love for their child facing off with professionals who seem to refuse to be proactive, while loved ones and acquaintances offer up their misguided and sometimes downright insensitive remarks. This culminates in a lot of hurt feelings, frayed relationships, and distrust of the medical community as a whole. Parents are left to fend for themselves and find that it’s easier to develop new relationships with families like theirs, who have a true sense of what it is they are going through; who share a diagnosis that can often leave them feeling like the world no longer spins on its axis and instead is hurtling through space with no real destination or purpose.</p>
<p>For medical professionals, I can only hope that continued training, improved diagnostic tools, and a willingness to respect parental concerns and honor their intuition will begin to prevail within the community. Side by side, you and your patient’s parents are the first in a long line of defense against a misdiagnosis or lost window of opportunity for progress. Your medical degree may have earned you your white lab coat and stethoscope, but the true measure of your greatness in the field is how you will wield your knowledge for the good of each and every one of the children entrusted in your care.</p>
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		<title>New medical-legal partnership</title>
		<link>http://approachtoautism.com/2011/12/27/new-medical-legal-partnership/</link>
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		<pubDate>Tue, 27 Dec 2011 14:24:14 +0000</pubDate>
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		<description><![CDATA[New medical-legal partnership will help families after autism diagnosis Asbury Park Press JASON TOWLEN/STAFF PHOTOGRAPHER December 2011 Almost one out of every 94 children born in New Jersey is diagnosed with Autism Spectrum Disorder. Autism Spectrum Disorder becomes apparent in early childhood. Those affected process information and perceive the world around them in a different way. [...]]]></description>
			<content:encoded><![CDATA[<p><a href="http://www.google.com/url?sa=X&amp;q=http://www.app.com/article/20111226/NJNEWS/312260096/New-medical-legal-partnership-will-help-families-after-autism-diagnosis&amp;ct=ga&amp;cad=CAcQAhgAIAAoATABOAFAoPfm9wRIAVAAWABiBWVuLVVT&amp;cd=vSm6zIKjqHM&amp;usg=AFQjCNFsMjwKSeGc3n5G7pbY5rKkGLz0ow" target="_blank">New medical-legal partnership will help families after <strong>autism</strong> diagnosis</a><br />
<span><a>Asbury Park Press</a><br />
JASON TOWLEN/STAFF PHOTOGRAPHER</span></p>
<p><span>December 2011</span></p>
<p><span> </span>Almost one out of every 94 children born in New Jersey is diagnosed with Autism Spectrum Disorder.</p>
<p>Autism Spectrum Disorder becomes apparent in early childhood.</p>
<p>Those affected process information and perceive the world around them in a different way.</p>
<p>Autism is not caused by emotional disturbance or bad parenting, according to research.</p>
<p>Its root causes remain undiscovered.<img class="alignleft" src="http://cmsimg.app.com/apps/pbcsi.dll/bilde?Site=B3&amp;Date=20111226&amp;Category=NJNEWS&amp;ArtNo=312260096&amp;Ref=AR&amp;MaxW=640&amp;Border=0&amp;New-medical-legal-partnership-will-help-families-after-autism-diagnosis" alt="Dr. Gary McAbee is the director of pediatric neurology at the New Jersey Neuroscience Institute at the JFK Medical Center in Edison." width="384" height="256" /></p>
<p>Dr. Gary McAbee, director of pediatric neurology at the New Jersey Neuroscience Institute at the JFK Medical Center in Edison, is heading an effort to create a medical-legal partnership designed to help patients and families sort through the various legal matters that follow a diagnosis.</p>
<p>McAbee also is a lawyer. He said this has made him aware of issues that are legal and not medical in nature.</p>
<p>These issues provide their own challenges and physicians may not be equipped to advise patients.</p>
<p>“The concept for (a medical-legal partnership) came out of Boston University about 25 years ago and was based on the philosophy that doctors are not going to solve all problems for patients,” he said. “There are many problems that patients have which are not medically driven, but economically and legally driven. There are actually about 100 medical-legal partnerships nationally, but only one in New Jersey at Beth Israel, as of right now.”</p>
<p>The partnership that he is developing will be more specific in nature, he said.</p>
<p>“We’re going to have one that is specialized to the autistic population, and to our knowledge, this would be the first in the country. We are partnering with the Legal Services of New Jersey, which is funded by the state. We also are going to partner with the Eden Autism Services group, an organization that deals with community-based services and educational services for the autistic population.”</p>
<p>Dr. Thomas McCool, Eden’s chief executive officer, said that this new partnership is important due to the crucial window of time that follows a diagnosis.</p>
<p>“Eden is an organization that works with children with autism at a very early age, almost from six months of age, because we recognize that early intervention services are the most important these children can get,” he said. “They often can’t wait until an official diagnosis, so Eden is called in by pediatricians and families who even suspect that the child may have autism.”</p>
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		<title>The Drake Institute of Behavioral Medicine in southern California has applied a new neurofeedback technology in the treatment of Autistic patients</title>
		<link>http://approachtoautism.com/2011/12/24/the-drake-institute-of-behavioral-medicine-in-southern-california-has-applied-a-new-neurofeedback-technology-in-the-treatment-of-autistic-patients/</link>
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		<pubDate>Sat, 24 Dec 2011 00:23:10 +0000</pubDate>
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		<description><![CDATA[Dr. David Velkoff &#8211; Drake Institute of Behavioral Medicine It is very exciting and gratifying to see these autistic children make such gains in 2-4 months. Irvine, California (PRWEB) December 23, 2011 The Drake Institute of Behavioral Medicine in southern California has applied a new neurofeedback technology in the treatment of Autistic patients that is enabling [...]]]></description>
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<p>Dr. David Velkoff &#8211; Drake Institute of Behavioral Medicine</p>
<div><img src="http://www.prweb.com/images/release-topquote.gif" alt="Quote start" hspace="5" width="29" height="25" />It is very exciting and gratifying to see these autistic children make such gains in 2-4 months.<img src="http://www.prweb.com/images/release-bottomquote.gif" alt="Quote end" hspace="5" width="29" height="25" align="absmiddle" /></div>
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<p>Irvine, California (PRWEB) December 23, 2011</p>
<p>The <a title="Drake Institute Autism" href="http://www.drakeinstituteautism.com/">Drake Institute</a> of Behavioral Medicine in southern California has applied a new neurofeedback technology in the treatment of Autistic patients that is enabling Autistic patients to achieve more rapid and comprehensive improvement. The deficits that Autistic children suffer are linked to functional disconnections within and between different regions or networks in the brain. Advanced neurofeedback treatment protocols are derived from an analysis of the patient&#8217;s quantitative EEG brainmap. As many as 19 areas of the brain can be treated simultaneously to create more functional connections in the brain to improve social communication, language, and emotional stability.</p>
<p>The <a title="Drake Institute Irvine" href="http://www.drakeinstituteirvine.com/">Drake Institute</a> has been able to help Autistic patients for over a decade utilizing neurofeedback. Previously, only 1 or 2 areas of the brain could be treated simultaneously, but patients still experienced significant improvements. The new technology, applied clinically, greatly accelerates and expands their improvements. By training all 19 areas of the brain simultaneously, the child is processing much greater information enabling the brain to develop to more normalized functioning.</p>
<p>Dr. David Velkoff, the medical director of the Drake Institute, states that &#8220;It is very exciting and gratifying to see these autistic children make such gains in 2-4 months&#8221;.</p>
<p>About The Drake Institute:<br />
The <a title="Drake Institute Success" href="http://www.drakeinstitutesuccess.com/">Drake Institute</a> of Behavioral Medicine was founded in 1980. Originally it focused on treating stress related disorders and diseases using the mind body connection with biofeedback treatment methods. By 1992 it began to use neurofeedback technology and brain mapping to treat Attention Deficit Disorder. Gradually the Drake Institute began to apply its treatment methods to help</p>
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		<title>Tips From Stars&#8230;</title>
		<link>http://approachtoautism.com/2011/12/12/1733/</link>
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		<pubDate>Mon, 12 Dec 2011 16:06:20 +0000</pubDate>
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		<description><![CDATA[Green Holiday Tips from the Stars at Autism Speaks Event Ecorazzi - ‎Dec 8, 2011‎ Holly Robinson Peete, Sarah McLachlan, JK Simmons, Sinbad and a few other celebrities helped make the inaugural Blue-Tie Jean Ball a success. The ball, held at the House of Blues in LA, raised approximately $250000 for Autism Speaks, a non-profit &#8230; Stars support [...]]]></description>
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<h2><a id="MAA4AEgAUABgAWoCdXM" href="http://news.google.com/news/url?sa=t&amp;ct2=us%2F0_0_s_0_0_t&amp;usg=AFQjCNEYwHkmlH_g9kNtEtAdG3baLUyQlA&amp;did=85ff5c7428653078&amp;sig2=OFMlERCohF90XsQOmFFJDg&amp;cid=17593974334064&amp;ei=2SXmTrjwDIrzsgetLg&amp;rt=STORY&amp;vm=STANDARD&amp;url=http%3A%2F%2Fwww.ecorazzi.com%2F2011%2F12%2F08%2Fgreen-holiday-tips-from-the-stars-at-autism-speaks-event%2F" target="_blank">Green Holiday Tips from the Stars at Autism Speaks Event</a></h2>
<div>Ecorazzi - ‎Dec 8, 2011‎</div>
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<div>Holly Robinson Peete, Sarah McLachlan, JK Simmons, Sinbad and a few other celebrities helped make the inaugural Blue-Tie Jean Ball a success. The ball, held at the House of Blues in LA, raised approximately $250000 for Autism Speaks, a non-profit <strong>&#8230;</strong></div>
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<div><a title="Mother Nature Network" href="http://www.mnn.com/lifestyle/arts-culture/stories/stars-support-autism-speaks-share-green-holiday-tips" target="_blank"><img src="http://nt2.ggpht.com/news/tbn/NvmjL0Mm8DImQM/6.jpg" alt="" width="80" height="80" /></a></div>
<h2><a id="MAA4AEgBUABgAWoCdXM" href="http://www.mnn.com/lifestyle/arts-culture/stories/stars-support-autism-speaks-share-green-holiday-tips" target="_blank">Stars support Autism Speaks, share green holiday tips</a></h2>
<div>Mother Nature Network - ‎Dec 7, 2011‎</div>
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<div>The inaugural Blue Tie-Blue Jean Ball, held at the House of Blues in LA, raised roughly $250000 for Autism Speaks, the world&#8217;s largest autism science and advocacy non-profit. Sarah McLachlan headlined the <strong>&#8230;</strong></div>
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		<title>Autism and Holidays</title>
		<link>http://approachtoautism.com/2011/11/18/autism-and-holidays/</link>
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		<pubDate>Fri, 18 Nov 2011 15:03:51 +0000</pubDate>
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		<description><![CDATA[Twelve Tips for a Happy Holiday Season -AutismSociety  - November 2011 While many happily anticipate the coming holiday season, families of people on the autism spectrum also understand the special challenges that may occur when schedules are disrupted and routines broken. Our hope is that by following these few helpful tips, families may lessen the stress of [...]]]></description>
			<content:encoded><![CDATA[<h1>Twelve Tips for a Happy Holiday Season</h1>
<p><em>-AutismSociety  - </em>November 2011</p>
<p>While many happily anticipate the coming holiday season, families of people on the autism spectrum also understand the special challenges that may occur when schedules are disrupted and routines broken. Our hope is that by following these few helpful tips, families may lessen the stress of the holiday season. and make it a more enjoyable experience for everyone involved. The following tips were developed with input from the Autism Society, the Indiana Resource Center for Autism, Easter Seals Crossroads, the Sonya Ansari Center for Autism at Logan and the Indiana Autism Leadership Network..</p>
<p><strong>1. Preparation is crucial for many individuals.</strong> At the same time, it is important to determine how much preparation a specific person may need. For example, if your son or daughter has a tendency to become anxious when anticipating an event that is to occur in the future, you may want to adjust how many days in advance you prepare him or her. Preparation can occur in various ways by using a calendar and marking the dates of various holiday events, or by creating a social story that highlights what will happen at a given event.</p>
<p><strong>2. Decorations around the house may be disruptive for some.</strong> It may be helpful to revisit pictures from previous holidays that show decorations in the house. If such a photo book does not exist, use this holiday season to create one. For some it may also be helpful to take them shopping with you for holiday decorations so that they are engaged in the process. Or involve them in the process of decorating the house. And once holiday decorations have been put up, you may need to create rules about those that can and cannot be touched. Be direct, specific and consistent.</p>
<p><strong>3. If a person with autism has difficulty with change, you may want to gradually decorate the house.</strong> For example, on the first day, put up the Christmas tree, then on the next day, decorate the tree and so on. And again, engage them as much as possible in this process. It may be helpful to develop a visual schedule or calendar that shows what will be done on each day.</p>
<p><strong>4. If a person with autism begins to obsess about a particular gift or item they want, it may be helpful to be specific and direct about the number of times they can mention the gift.</strong> One suggestion is to give them five chips. They are allowed to exchange one chip for five minutes of talking about the desired gift. Also, if you have no intention of purchasing a specific item, it serves no purpose to tell them that maybe they will get the gift. This will only lead to problems in the future. Always choose to be direct and specific about your intentions.</p>
<p><strong>5. Teach them how to leave a situation and/or how to access support when an event becomes overwhelming.</strong> For example, if you are having visitors, have a space set aside for the child as his/her safe/calm space. The individual should be taught ahead of time that they should go to their space when feeling overwhelmed. This self-management tool will serve the individual into adulthood. For those who are not at that level of self-management, develop a signal or cue for them to show when they are getting anxious, and prompt them to use the space. For individuals with more significant challenges, practice using this space in a calm manner at various times prior to your guests&#8217; arrival. Take them into the room and engage them in calming activities (e.g., play soft music, rub his/her back, turn down the lights, etc.). Then when you notice the individual becoming anxious, calmly remove him/her from the anxiety-provoking setting immediately and take him/her into the calming environment.</p>
<p><strong>6. If you are traveling for the holidays, make sure you have their favorite foods, books or toys available.</strong>Having familiar items readily available can help to calm stressful situations. Also, prepare them via social stories or other communication systems for any unexpected delays in travel. If you are flying for the first time, it may be helpful to bring the individual to the airport in advance and help him/her to become accustomed to airports and planes. Use social stories and pictures to rehearse what will happen when boarding and flying.</p>
<p><strong>7. Know your loved one with autism and how much noise and activity they can tolerate.</strong> If you detect that a situation may be becoming overwhelming, help them find a quiet area in which to regroup. And there may be some situations that you simply avoid (e.g., crowded shopping malls the day after Thanksgiving).</p>
<p><strong>8. Prepare a photo album in advance of the relatives and other guests who will be visiting during the holidays.</strong> Allow the person with autism access to these photos at all times and also go through the photo album with him/her while talking briefly about each family member.</p>
<p><strong>9. Practice opening gifts, taking turns and waiting for others, and giving gifts.</strong> Role play scenarios with your child in preparation for him/her getting a gift they do not want. Talk through this process to avoid embarrassing moments with family members. You might also choose to practice certain religious rituals. Work with a speech language pathologist to construct pages of vocabulary or topic boards that relate to the holidays and family traditions.</p>
<p><strong>10. Prepare family members for strategies to use to minimize anxiety or behavioral incidents, and to enhance participation.</strong> Help them to understand if the person with autism prefers to be hugged or not, needs calm discussions or provide other suggestions that will facilitate a smoother holiday season. If the individual becomes upset, it might also be helpful to coach others to remain calm and neutral in an effort to minimize behavioral outbursts.</p>
<p><strong>11. If the person with autism is on special diet, make sure there is food available that he/she can eat.</strong> And even if they are not on a special diet, be cautious of the amount of sugar consumed. And try to maintain a sleep and meal routine.</p>
<p><strong>12. Above all, know your loved one with autism.</strong> Know how much noise and other sensory input they can take. Know their level of anxiety and the amount of preparation it may take. Know their fears and those things that will make the season more enjoyable for them.</p>
<p>Don’t stress. Plan in advance. And most of all have a wonderful holiday season!</p>
<p>&nbsp;</p>
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		<title>Tranquility Balance</title>
		<link>http://approachtoautism.com/2011/09/06/tranquility-balance/</link>
		<comments>http://approachtoautism.com/2011/09/06/tranquility-balance/#comments</comments>
		<pubDate>Tue, 06 Sep 2011 18:51:56 +0000</pubDate>
		<dc:creator>admin</dc:creator>
				<category><![CDATA[Special Stories]]></category>

		<guid isPermaLink="false">http://approachtoautism.com/?p=1642</guid>
		<description><![CDATA[Reprinted with permision: Texas Case Management Magazine North Texas region Everyone is affected by chaos, it is just a matter of to what degree, but fortunately, now there is help available. Sensory Interior Design, owned and operated by Carolyn Feder of Dallas, Texas, is in the business of transforming homes, offices and schoolrooms. Overloaded places with [...]]]></description>
			<content:encoded><![CDATA[<div><em><strong>Reprinted with permision: Texas Case Management Magazine</strong></em></div>
<div id="yiv2045642657yui_3_2_0_18_1314975268556957"><em><strong id="yiv2045642657yui_3_2_0_18_1314975268556960">North Texas region</strong></em></div>
<p><em>Everyone is affected by chaos</em>, it is just a matter of to what degree, but fortunately, now there is help available. <strong>Sensory Interior Design</strong>, owned and operated by Carolyn Feder of Dallas, Texas, is in the business of transforming homes, offices and schoolrooms.</p>
<p>Overloaded places with too many sensory stimulants become havens where the mind and body can rest and occupants can function at their optimal potential.</p>
<p>Carolyn Feder is registered with the Texas Board of Architectural Examiners and the Texas Association of Interior Design. It may seem surprising that an interior design firm can be instrumental in assisting with anxiety and other disorders, but for this company it couldn’t be more perfect.</p>
<p>With years of experience in the design industry and many clients, Carolyn has gained unique insight on how everyday elements affect us and about the fear of change. Her ‘one-of-a-kind’ methods are affordable, therapeutically valuable and of course, aesthetically pleasing to the eye. If you or someone you know suffers from anxiety or lives with ADD/ADHD, sensory processing disorder, various degrees of autism, this approach is ideal. If you feel overwhelmed and unable to adjust to any environment, you will benefit immediately by contacting Sensory Interior Design and watch your life improve!</p>
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